The Mutant Project: Inside the Global Race to Genetically Modify Humans

Summary

An anthropologist visits the frontiers of the next scientific revolution to ask: whose values are guiding gene editing experiments, and what are the implications for humanity? At a conference in Hong Kong in November 2018, Dr. He Jiankui announced that he had created the first genetically modified babies?twin girls named Lulu and Nana?sending shockwaves around the world. A year later, a Chinese court sentenced Dr. He to three years in prison for "illegal medical practice." As scientists elsewhere start to catch up with Chinas vast genetic research program, gene editing is fueling an innovation economy that threatens to widen racial and economic inequality. Fundamental questions about science, health, and social justice are at stake: Who gets access to gene editing technologies? As countries around the globe, from the U.S. to Indonesia, loosen regulations, can we shape research agendas to promote an ethical and fair society? Eben Kirksey takes us on a groundbreaking journey to meet the key scientists, lobbyists, and entrepreneurs who are bringing cutting-edge genetic modification tools like CRISPR to your local clinic. He also ventures beyond the scientific echo chamber, talking to disabled scholars, doctors, hackers, chronically-ill patients, and activists who have alternative visions of a future shaped by genetic engineering. The Mutant Project empowers us to ask the right questions, uncover the truth, and better prepare for this brave new world we're already entering.